Duchenne Muscular Dystrophy for The New York Times

On April 25, 2016, the Food and Drug Administration met at the University of Maryland University College to hear pleas from desperate patients, and consider clinical trial data from a Sarepta drug (eteplirsen) that could help those with Duchenne muscular dystrophy.

During presentations to the F.D.A., Stacie Al-Chokhachi embraces her son, Dalton, who has Duchenne muscular dystrophy. Stacie and Dalton came from Memphis to participate in the event and show their support.

A link to the New York Times article is here.